The real stuff no one tells you on life with MS

Search "MS and friends and family" and you'll come up with about 1,000 websites about telling your friends and family and how they just want to support you. I call bullshit. Some of us live in the real world.   "Your friends care and want to know!". Really? We're in our 20s and 30s people. We're not 60 year olds sitting in a back pew talking about who's sick these days.  I told a "good friend". Turned out she really just needed me for her Friday night wingwoman, and MS was more than she could handle. Sure you could say "you're better off without her!" But those Friday nights were fun and now that I've been labeled as "not fun" I'm not invited much anymore even though I'm perfectly able to go out and could use the tequila and stress release.  So I regret telling her. "Your family wants to support you"! That's not true for everyone and the assumption that everyone has loving p

Who are you and why did you create this? Good, solid existential questions. I created this because I'm tired of reading bad advice for people with MS that doesn't apply in today's world.  Google what life is like with ms or prognosis upon diagnosis and you'll see a lot of crap of "only 7 years less than others" (ridiculously outdated data, by the way) and "85%  don't end up in a wheelchair!" (also outdated, and doesn't really tell you about what it's like to be normal or at least semi-normal youngish adult land how it REALLY impacts your life.   I didn't see any advice that felt relevant to me, so I figured if I was feeling that way some other people probably were too. So if a couple people find this and find it useful, that's great. What qualifies you to speak about this? Technically nothing I suppose. Well, a fancy doctor in New York told me I had MS. Then I saw some other fancy doctors because I thought they were full