Who are you and why did you create this?
Good, solid existential questions.
I created this because I'm tired of reading bad advice for people with MS that doesn't apply in today's world. Google what life is like with ms or prognosis upon diagnosis and you'll see a lot of crap of "only 7 years less than others" (ridiculously outdated data, by the way) and "85% don't end up in a wheelchair!" (also outdated, and doesn't really tell you about what it's like to be normal or at least semi-normal youngish adult land how it REALLY impacts your life.
I didn't see any advice that felt relevant to me, so I figured if I was feeling that way some other people probably were too. So if a couple people find this and find it useful, that's great.
What qualifies you to speak about this?
Technically nothing I suppose. Well, a fancy doctor in New York told me I had MS. Then I saw some other fancy doctors because I thought they were full of shit and unfortunately they agreed with doctor #1. I've been having all kinds of strange symptoms and living with this a few years now so in a way that qualifies me more to write about living with this than a fancy doctor who's never actually felt what this weird disease feels like on a single day day of their life. So you can read this and decide for yourself.
Why not just write a column like everyone else?
All the established sites are biased in one way or another depending on who gives them funding. They also will have to censor some of the content. Also, they wouldn't let me curse.
Who is this blog for?
There's two tests.
TEST #1.
Have you or someone you care about recently been diagnosed with MS? If the answer is yes you passed test #1 and this blog is for you.
TEST #2.
Please read the following statements and write down your gut reaction.
"I may have MS, but MS doesn't have me!"
"Be positive."
"It will only impact your life if you let it."
"Change your diet, change your disease".
If you remotely agree with any of the above then this blog is not for you. But if you're tired of the positivity crap that's fed out there and are pretty sure that the one day you lost your smile, gave into a bad day and said "fuck this shit" is NOT the cause of your disease then you just passed Test #2.
Congratulations, you or your friend lost the life lottery and you want to live in the real world where people don't polish turds. This blog may be for you.
Good, solid existential questions.
I created this because I'm tired of reading bad advice for people with MS that doesn't apply in today's world. Google what life is like with ms or prognosis upon diagnosis and you'll see a lot of crap of "only 7 years less than others" (ridiculously outdated data, by the way) and "85% don't end up in a wheelchair!" (also outdated, and doesn't really tell you about what it's like to be normal or at least semi-normal youngish adult land how it REALLY impacts your life.
I didn't see any advice that felt relevant to me, so I figured if I was feeling that way some other people probably were too. So if a couple people find this and find it useful, that's great.
What qualifies you to speak about this?
Technically nothing I suppose. Well, a fancy doctor in New York told me I had MS. Then I saw some other fancy doctors because I thought they were full of shit and unfortunately they agreed with doctor #1. I've been having all kinds of strange symptoms and living with this a few years now so in a way that qualifies me more to write about living with this than a fancy doctor who's never actually felt what this weird disease feels like on a single day day of their life. So you can read this and decide for yourself.
Why not just write a column like everyone else?
All the established sites are biased in one way or another depending on who gives them funding. They also will have to censor some of the content. Also, they wouldn't let me curse.
Who is this blog for?
There's two tests.
TEST #1.
Have you or someone you care about recently been diagnosed with MS? If the answer is yes you passed test #1 and this blog is for you.
TEST #2.
Please read the following statements and write down your gut reaction.
"I may have MS, but MS doesn't have me!"
"Be positive."
"It will only impact your life if you let it."
"Change your diet, change your disease".
If you remotely agree with any of the above then this blog is not for you. But if you're tired of the positivity crap that's fed out there and are pretty sure that the one day you lost your smile, gave into a bad day and said "fuck this shit" is NOT the cause of your disease then you just passed Test #2.
Congratulations, you or your friend lost the life lottery and you want to live in the real world where people don't polish turds. This blog may be for you.
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